After our January episode detailed in my previous blog, Q went to a crisis stabilization program for a week. When she returned we had two weeks of stability. After that, it was a fight for our lives. This picks up where we are now.
We last saw Q on March 16th when she had an emergency referral to a statewide mental health stabilization program. In type that sounds like it was a streamlined referral but fighting for months to get someone to notice her was anything but streamlined. The way we finally got noticed involved injury to respite providers, Q hanging a cat, a police escort, and myself making a dramatic scene in the Emergency Room saying that I couldn’t do it anymore and asking if someone would like to evaluate my mental stability. A show indeed. We finally got DCF to agree to take her into their custody so that they could do some work. We could not go on any more. If I ever wondered what my breaking point looked like, I found it.
She was referred to a high-level facility 5 hours a way for their short term program for youth experiencing mental crisis and in need of stabilization. It is typically 11 days but because she was so unstable, she stayed for 6 weeks. Finally, someone noticed. The medical team there acknowledged we were in fact not crazy and they do not know how we lasted as long as we did. They diagnosed her with what seemed like everything possible. PTSD, Oppositional Defiance Disorder, Reactive Attachment Disorder, ADHD, Autism Spectrum Disorder, Fetal Drug Exposure, Psychosis. I’m sure there is one that I missed or one that they missed. It’s all a mess so I don’t know that one less or more would be noticed.
Two weeks ago she was discharged and sent to a residential facility because no one felt it was safe enough for her to be in a home environment. There was only one place in the state that would take her because of her young age. Being 5 doesn’t exactly fit into any of the residential models that are available in the state. So they are creating one for her. The place has been terrible so far and the Court is not pleased with the placement. We can only hope a better placement can be developed.
On Mother’s Day we drove for 2 hours to visit with Q in the first time in two months. We stopped at Walmart to pick up a few pairs of clothes for her as we assumed she would have grown out of everything since we last saw her. Afterwards we discovered all of the bathrooms were out of order in Walmart and the ones in nearby stores. Awkward timing. But a two hour drive and a shopping trip left an emergent need for a bathroom visit before going into unknown territory. We ended up rushing into a hospital and finding a bathroom. It smelled like bleach and I felt the secondary panic of hospital bathrooms subside.
I found myself on Mother’s Day removing tags, matching small child-sized socks, and folding the clothes nicely in a hospital parking lot and waiting for it to be time to drive to the residential facility. I couldn’t help but notice that the weather was perfect for Mother’s Day and I hoped most people were not experiencing the kind of anxiety and heartache that I was. We passed restaurants that had signs out advertising for Mother’s Day brunch and specials. The parking lots were packed with cars and families were smiling and visiting on their way into gorge themselves on a feasts and conversation. I wondered what I would order. I wondered if I would ever have a Mother’s Day like that. I wondered if this visit would be my last. I wondered if I would ever buy clothes for her again. I wondered how long we could go on like this.